癫痫儿童及其家长社会心理状态研究

Paychosocial State of Epileptic Children and Their Parents

摘要:

目的 研究癫痫儿童及其父母的社会心理状态 ,并进行干预。方法 采用自行设计的“癫痫儿童社会心理状况调查问卷”及“癫痫儿童家长问卷”观察 10 5例癫痫儿童及其家长的社会心理状态 ,以癫痫知识科普讲座及个别咨询相结合的方法对所存在的问题进行干预。结果 5 1.4%和 2 6 .7%患儿对患病及长期服药非常担心 ;情绪、社会适应能力很差者分别为 46 .7%及 2 3.8% ,自评健康状况差和对生活很不满意者分别为 31.4%及2 6 .7% ;6 1%家长情绪非常焦虑 ,约半数对患儿患病及需长期服抗癫痫药非常担心 ,1/ 3以上家长癫痫知识贫乏 ,并对患儿心理知之甚少。经过咨询 ,患儿及家长的心理状态明显改善 ,上述各项前后相比差异极为显著 (均P <0 .0 1)。结论 癫痫儿童及父母存在心理障碍 ,心理咨询是消除或减轻心理障碍的有效治疗方法

Abstract:

Objective To study the psychosocial state of epileptic children and their parents, and to give them psychological intervention. Methods We designed a “Psychosocial Inventory for Children with Epilepsy” and a “Questionnaire for Parents of Children with Epilepsy” and used these tools to assess psychosocial state of 105 epileptic children and their parents. Intervention consisted of courses about epilepsy and individual consultation for psychosocial disturbances. Results Worries about epilepsy and drug effects existed in 51.4% and 26.7% of the children with epilepsy, respectively; 46.7% , 23.8% , and 31.4% of the children were worst on their emotion, social function and health state, respectively; 26.7% weren't satisfied with the quality of life. About half of the parents were very anxious; they were worried about their children's epilepsy and long term medication; more than one third had little information about epilepsy and the psychosocial state of their children. After the consultation, the psychosocial state of epileptic children and their parents improved obviously; there were significant differences in the results of the above items before and after the consultation (P< 0.01 ). Conclusions Psychosocial disturbances exist in a majority of epileptic children and their parents. Psychosocial consultation is an effective method for eliminating or reducing psychological disturbances.