采用PedsQL量表对矮小症儿童的生存质量分析

Quality of life in children with short stature: an analysis using PedsQL

摘要:

目的：了解矮小症儿童的生活质量及心理社会功能与正常身高儿童是否存在差异。方法：采用PedsQL量表对2011年6月至2012年6月间53名5~18岁诊断为矮小症的儿童及其家长或监护人进行调查，79名4~17岁健康儿童作为对照组。结果：PedsQL儿童自评量表评估显示矮小组总评分明显高于对照组 （25.3±11.2 vs 21.1±10.3，P<0.05），且量表中的步行200米、举大件物品、受伤或疼痛、担心有什么事将会发生、不能完成同龄儿童胜任的事、游戏时跟不上其他孩子、上课时注意力不集中、丢三落四、学校活动中跟不上其他同龄人等9项条目及总分中，得分均不同程度地高于对照组儿童，差异有统计学意义（P<0.05）。PedsQL父母代评量表评估显示睡眠不好、上课时注意力不集中、学校活动中跟不上其他同龄人、丢三落四等4项条目高于对照组（P<0.05），但两组间总分差异无明显统计学意义（P>0.05）。结论：矮小症儿童在心理社会功能发育的健全程度上落后于正常身高儿童。

Abstract:

OBJECTIVE: To study the differences in quality of life and psychosocial function between children with short stature and children with normal stature. METHODS: The Pediatric Quality of Life Inventory (PedsQL) was used to survey 53 children aged 5-18 years who were diagnosed with short stature between June 2011 and June 2012, and their parents or guardians. Seventy-nine healthy children aged 4-17 years were selected as the control group. RESULTS: For PedsQL Child-Self Report, the children with short stature had a significantly higher total score than the control children (25.3±11.2 vs 21.1±10.3; P<0.05), and the former had significantly higher scores than the latter on the following items: It is hard for me to walk more than one block; It is hard for me to lift something heavy; I hurt or ache; I worry about what will happen to me; I cannot do things that other kids of my age can do; It is hard to keep up when I play with other kids; It is hard to pay attention in class; I forget things; I have trouble keeping up with my schoolwork (P<0.05). For PedsQL Parent-Proxy Report, the children with short stature had significantly higher scores than the control children on the following items: troubled sleeping; paying attention in class; keeping up with schoolwork; forgetting things (P<0.05). There was no significant difference in total score, however, between the two groups (P>0.05). CONCLUSIONS: Children with short stature have poorer development of psychosocial function than children with normal stature.