哮喘儿童家庭管理现状及家庭需求的质性研究

Qualitative research on the family management and family needs of children with asthma

摘要:

目的：探讨哮喘儿童家庭管理中存在的问题以及患儿家庭对医疗护理服务的需求，旨在为患儿提供针对性的医疗护理服务并为实施以家庭为中心的护理提供依据。方法：应用质性研究中的访谈法，对15位哮喘儿童家长进行深入访谈, 采用Colaizzi的现象学资料7步分析法，对获得的资料进行分析、整理，提出主题。结果：哮喘儿童的照护现状及家庭需求主要包括5个方面，即患儿家长对疾病缺乏正确的认识，依从性较差，忽视哮喘对患儿心理的影响，家庭应对失败，家庭承受着心理和经济压力。结论：医护人员应经常对患儿照顾者进行哮喘知识宣传教育，鼓励他们参与患儿的治疗、护理方案的制定，并有针对性地对患儿照顾者采取个性化的教育、指导。［中国当代儿科杂志，2009，11（6）：437-440］

Abstract:

OBJECTIVE: A qualitative research was conducted to investigate the problems on the family management of asthmatic children and the needs for family health services in order to provide basis for family-centered care. METHODS: Fifteen caregivers of children with asthma were interviewed with open-ended questions. The collected data were studied using Colaizzi's seven-step method of phenomenological analysis. RESULTS: The problems of family management and the needs for family health services were shown as follows: insufficient knowledge to prevention and treatment of asthma, poor compliance, ignoring psychological effects of asthma on children, a family's failure to cope with the distress and financial burden. CONCLUSIONS: It is important to provide asthma education and prevention program for caregivers and encourage them to participate in the design of medical program for asthmatic children. Individual asthma education and guides are also necessary for caregivers.［Chin J Contemp Pediatr, 2009, 11 (6):437-440］